Parallel Session F: Challenges and Development of Rare Disease Management and Policy

  1. Rare disease is not rare

    2. Brian CHUNG, Hong Kong Genome Institute

  2. Importance of Patient Registry for clinical advancement

    3. Edwin CHAN, The Chinese University of Hong Kong

  3. Confession from the family with Rare disease

    4. Rebecca YUEN, Tuberous Sclerosis Complex Association of Hong Kong

  4. Speak for us, a new value for public policy

    5. Joephy W. Y. CHAN, Legislative Council

  5. Improving the Diagnosis of Rare Genetic Diseases through CoGenesis: An Integrated Bioinformatics Platform

    6. Allen YU, Aldrin YIM, Codex Genetics Limited

  6. R&D for new drugs

    7. Ivan LEE, Lee’s Pharmaceutical (HK) Limited



Disclaimer and Acknowledgement:
Any opinions, findings, conclusions or recommendations expressed in this material/any event organised under this project do not reflect the views of the Government of the Hong Kong Special Administrative Region or the Vetting Committee of the Professional Services Advancement Support Scheme.
This material/event is funded by the Professional Services Advancement Support Scheme of the Government of the Hong Kong Special Administrative Region.

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